I probably would not have bothered to allocate time to this pre ai, the juice wasnt really worth the squeeze. But I approached it with an initial amusing naivete about it being 'super simple'. As is almost always the case with software theres a reasonable amount of hidden complexity. But I have been using it as a sort of learning proving ground for how to work with agentic development. For example I got to a point where claude wouldnt implement properly and would argue with me about changes because it would read the current/old docs in the repo and get confused about reality. So right now I'm experimenting with 'canonical specs' that can only be changed modally with gates and a defined cascade from canon, to code, to docs in that order. Otherwise you end up in a weird thrash about the docs and the code disagree and which one will the agent decide to change for consistency?

Anyway, its been interesting and its v0.6 and at a point where Ive not hit a sharp edge dogfooding for a while and some beta testers would be valuable. Right now you have to manually wire it into your stack, once some others have kicked the tyres hard enough I will make some pr's to the popular tools to consider integrating it.

I really wish the audio technica headband style was more common, even they use it less now. The two winglets as the head contact are just so much more comfortable than literally any other configuration.

Has anyone done a teardown and figured out where all the gravity in these things comes from?

Treatments are poor, the condition itself and its systemic effects are almost unstudied. Most doctors either dont know about it or their knowledge stops at 'flexible'. Some doctors (surgeons esp) may even decline to work with you if you disclose EDS.

CSF leak, either from a lumbar puncture, or from things like chiari malformation and other cervical abnormalities are a well known phenomenon within the community. A person complaining of persistent postural headaches usually gets csf leak as the first response from said community. It is however, incredibly difficult to get a doctor to be willing to diagnose it, to have it competently found, and then patched.

He had had a close friend pass recently and he had, within the last few weeks, used mushrooms to help treat the depression/grief. Ie he did not crash the plane mid psychotic break slash psychadelic trip.

We absolutely run into this issue of new people floating ideas and the old hats going 'for the 100th time that will not work because x y z' and the new person going 'jesus, ok then'. Theres a lot of history and learnings thats hard to solidify and pass on and get people into the same book, not even the same page. I still haven't cracked this nut, it feels like i should write a bunch of documentation but i suspect it will not be read.

I've been the polite but chronic reminder/nagger. It does work but its extremely wearing on all participants. I've found the best way to do it is to pair or more people up, in a physical location at the same time to do things. Body doubling is like crack to my audhd brain but it works great for most people as well. Bonus points if you feed them. However, thats a high level of organisation and it can be really tricky to pull it off with the regularity and scale the organisation might require.

I've said in other comments i'd do unseemly things for a volunteer coordinator, but i'd make the devil blush if i could pin down a project manager. Most people just need structure, thats just the long and short of it I've found. You've gotta provide it some way or another, and doing it effectively is a full role and I have enough hats as it is.

How do you combat the old knowledge vs new (naive?) ideas issue? Do you try to reevaluate that 'old knowledge'? Just let the new idea down gently and explain the history? Talk about what you havent tried that might be relevant?

We definitely caution against taking on too much at first, or we give them clear deescalation paths should they struggle.

Hey, hey don't call me out like that. I'm the problem, its me. I absolutely have a tendency to do most of the work but want to run/control things tightly. Always pushing back on myself to try and chill out.

What do you think the main reasons volunteers quit are?